Thalidimide – FACS Syndrome – A Sorry 50 years later


http://www.dailymail.co.uk/health/article-2146918/Why-doctors-warning-new-Thalidomide.html

So, 50 years after the drug that caused the Thalidimide outcry, the drug company who made the drug have issued an apology.

My Opinion : An absolute disgrace – not 5 or 10, but 50 years.  Many of the patients who were born with Thalidimide, to my  knowledge sadly have passed away, so for their  families and remaining patients it is a sorry that has come to to late. Children who were born with Thalidimide were left with devastating effects on their body such as shortened limb, eye, ear  defects, malformations to genital parts and other things.

FACS Syndrome-(in which is being classed as The New Thalidimide)is  a condition in which babies are exposed to after  there mothers have taken anti epileptic drugs to control conditions such as Epilepsy, Depression, Mood Swings, Pain Relief and amazingly Migraine is still being issued.  So for the thousands of children worldwide with FACS….when will they receive there apology???  This is still continuing and the drugs are still being prescribed.  The NHS, and Government are aware of this but are totally ignoring it.

The Charity and Trust in which I am Trustee to, FACT  is our working  aim : to get an apology from the drug makers and also the Government as thousands of the mums taking these drugs have never been warned of the consequences and have continued to have children, un be-known the out come it will have on their children.

FACS Symptoms as Thalidimide :

In 2010 over 21,000 ladies were taking these medications and as it is un known of and patients are not being informed, thousands of babies across Britain and worldwide are born to FACS , numbers a lot higher than Thalidimide.

Why 50 years later are the drug company issuing an apology ?? They always denied that there drug had ever caused the condition.  A battle us at FACT Trust have with the current drug companies with the drugs they are manufacturing

Recently my families story was featured in Reveal Magazine to raise awareness on how FACS without warning has affected my 5 children

http://https://emma4facs.wordpress.com/2012/07/19/reveal-magazin…-facs-syndrome/

 

 

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