Media Awareness

This week has been so busy.  The interviews on raising awareness for FACS have gone in the papers this week which is really great.  The kids think there famous  which is cute.  I issued a Press Release to all the National Papers  so am hoping something will come back from that.  I had a lovely email from a lady  this week who was also on the medication and she had never heard of this until now.  Her children are a lot older now and showing symptoms but how bad is that.  The health service are not telling there patients about this condition. The amount of parents who are getting back to me who have either taken the meds or are on them now and pregnant is really scarey because they have never heard of this condition. The ladies getting back to me are not just in Britain but as far as America to.  This campaign will be pushed and pushed until it is in the public domain.  As a charity and a Trust that is our aim but for me its because Im a parent and it has affected all my children.


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